The LEND program at Boston Children's Hospital continues to offer interdisciplinary training to a cohort of LEND fellows. This year there are 23 fellows representing 13 disciplines. Fellows participate in a series of didactic seminars and courses each Friday from September thru mid-May. Course work focuses on interdisciplinary evaluations, Life Course perspective and public health, cultural competence, family-centered care and the medical home. Seminars devoted to clinical discussions, evidence-based research, Autism Spectrum Disorder, management/conflict resolution, and disability policy are offered through the year. Fellows also participate in community visits to families and to Title V program directors. Most fellows affiliate with various community-based organizations that offer services to diverse populations throughout the Boston area. These include the Haitian-American Public Health Initiative (HAPHI), Somali Development Center, Eritrean Community Center, Family Nurturing, Threshold Program at Lesley University, the Boston Public Health Commission, Partnership for Youth with Disabilities, Multicultural Independent Living Center of Boston, and Urban PRIDE. Other fellows are either working on their doctorate, or are Pediatric Audiology Externs or NDD Fellows and Post-Doc psychologists working at Children's. Many fellows also work as team members of the LEND Clinic, the Down Syndrome Program and visit the ASK clinical team. Near the end of the year most fellows go to Washington DC for the annual Disability Policy Seminar that culminates with visits to Capitol Hill with their Representatives and Senators. The end-of-year convocation will be May 9, 2014.
2015 LEND Fellows
Stephanie Porter publishes Third Edition of resource guide for school nurses
Supporting Students with Special Health Care Needs
Stephanie Porter, MSN, RN, as senior editor along with Patricia A. Branowicki, MS, RN, NEA-BC, FAAN and Judith S. Palfrey, MD, has just published Supporting Students with Special health Care Needs: Guidelines and Procedures for School. Third Edition with Paul H. Brookes Pub Co. This edition continues the ground-breaking tradition of the prior editions that support school nurses working with children with a wide range of special health care needs. Stephanie is the Director of Nursing for the LEND Program and works both with BCH Continuing Education Initiatives for school nurses and with the MA Dept of Public Health MASSTART Program supporting families in the communities as they work with their local school districts to provide a full educational experience to their children with special health care needs.
End-of-Life Care for Children and Adults with Intellectual and Developmental Disabilities
David Helm and Sandra Friedman of the Institute for Community Inclusion published a new book entitled End-of-Life Care for Children and Adults with Intellectual and Developmental Disabilities. Their book brings back the focus of palliative care decisions on respect, dignity, and the needs of the person with whom, or for whom, decisions are being made.
It is available at https://bookstore.aaidd.org/BookDetail.aspx?bid=98.