The LEND program at Boston Children's Hospital continues to offer interdisciplinary training to a cohort of LEND fellows. This year there are 23 fellows representing 13 disciplines. Fellows participate in a series of didactic seminars and courses each Friday from September thru mid-May. Course work focuses on interdisciplinary evaluations, Life Course perspective and public health, cultural competence, family-centered care and the medical home. Seminars devoted to clinical discussions, evidence-based research, Autism Spectrum Disorder, management/conflict resolution, and disability policy are offered through the year. Fellows also participate in community visits to families and to Title V program directors. Most fellows affiliate with various community-based organizations that offer services to diverse populations throughout the Boston area. These include the Haitian-American Public Health Initiative (HAPHI), Somali Development Center, Eritrean Community Center, Family Nurturing, Threshold Program at Lesley University, the Boston Public Health Commission, Partnership for Youth with Disabilities, Multicultural Independent Living Center of Boston, and Urban PRIDE. Other fellows are either working on their doctorate, or are Pediatric Audiology Externs or NDD Fellows and Post-Doc psychologists working at Children's. Many fellows also work as team members of the LEND Clinic, the Down Syndrome Program and visit the ASK clinical team. Near the end of the year most fellows go to Washington DC for the annual Disability Policy Seminar that culminates with visits to Capitol Hill with their Representatives and Senators. The end-of-year convocation will be May 9, 2014.
2015 LEND Fellows
David Helm, PhD, and Ludwik Szymanski, MD, from MA ICI UCEDD/LEND Receive Awards
David Helm and Ludwik Szymanski at the Children's Hospital Boston Division of Developmental Medicine awards ceremony
March 22, 2012
David Helm, PhD, Institute for Community Inclusion LEND Director, was awarded the Allen Crocker Award for his extensive commitment to disability issues. His long standing interest in working in the local communities, particularly community based minority organizations, created a great platform for linking the leadership training of LEND to real life community needs while providing a range of students (sometimes representing up to 20 disciplines) strategies on how to support policy development and community advocacy on behalf of children with disabilities and their families.
Ludwik Szymanski, MD, Director Emeritus in psychiatry at the Institute for Community Inclusion, was awarded the Lifetime Achievement Award at the Children's Hospital Boston Division of Developmental Medicine awards ceremony. He was recognized for his more than five decades of commitment to psychiatry and his deep affection for supporting and improving the lives of people with disabilities.
End-of-Life Care for Children and Adults with Intellectual and Developmental Disabilities
David Helm and Sandra Friedman of the Institute for Community Inclusion published a new book entitled End-of-Life Care for Children and Adults with Intellectual and Developmental Disabilities. Their book brings back the focus of palliative care decisions on respect, dignity, and the needs of the person with whom, or for whom, decisions are being made.
It is available at https://bookstore.aaidd.org/BookDetail.aspx?bid=98.